Friday, October 16, 2009
Well, his doctor informed us he was negative for everything, BUT he obviously definately has FPIES, the reason why is because it is experimental and some kids react while others do not. Now, I am just annoyed with the whole process. But I also got a free sample of the Neocate Nutra that I will try when I have a day off. We'll see how that goes. He is seeing a nutritionist nest week who is actually familiar with FPIES, so I am trying to stay positive. But yeah the patch testing failed.
Tuesday, October 13, 2009
Well Evan went to Childrens in Boston yesterday to get his patches on for the patch testing. They are testing dairy, wheat, eggs, apples, bananas, soy and oats. I take them off tomorrow but so far, no sign of any kind of aggitation with them. Unfortunately I cannot see if he is already reacting to them, although it looks like he could be to 5 out of the 7. So I guess we'll see about it. I take him back to Boston on Thursday to get them removed and his Doctor will evaluate it. He is still solely on breastmilk, and only weighs 17 lbs, according to his pediatrician in his 5th percentile on height. He is really only maintaining now. But I did get a sample of Neocate Nutra which I will try after Thursday and hopefully that will do it. It is for people with protein intolerances. It is all amino acid based... hopefully we'll be okay with that one!